Qualitative and Patient-Reported Outcomes Shared Resource

Providing expertise, consultation and mentoring for research projects that use qualitative designs and patient-reported outcomes measurement.

The mission of the Qualitative and Patient-Reported Outcomes Shared Resource (Q-PROSR) is to enrich science and improve health by amplifying perspectives on complex and underexplored health, system and societal challenges.

The Q-PROSR supports population-focused research by providing pre-award scientific consultation to investigators and research infrastructure to support both qualitative and patient-reported outcomes research for funded projects. We address the unmet needs for methodological expertise in qualitative research and patient-reported outcomes that promote translational research in clinical and community settings.

Publication Highlights

Q-PROSR services have led to many publications with investigators; below are a sample:

Price SN, Houston TK, Sadasivam RS, Wentworth S, Chandler A, Strahley A, et al. A qualitative study of stakeholders' experiences with and acceptability of a technology-supported health coaching intervention (SHARE-S) delivered in coordination with cancer survivorship care. Cancer Med 2024;13:e7441.
Brooks AK, Athawale A, Rush V, Yearout A, Ford S, Rejeski WJ, et al. Successes and lessons learned from a mobile health behavior intervention to reduce pain and improve health in older adults with obesity and chronic pain: a qualitative study. Front Pain Res (Lausanne) 2024;5:1340400.
Keegan A, Strahley A, Taylor SP, Wilson TM, Shah MD, Williamson J, et al. Older Adults' Perspectives on Screening for Cognitive Impairment Following Critical Illness: Pre-Implementation Qualitative Study. Crit Care Explor 2023;5:e0920.
Cassidy RN, Bello MS, Denlinger-Apte R, Goodwin C, Godin J, Strahley AE, et al. The impact of the COVID-19 pandemic on a sample of US young adults who smoke cigarettes: A qualitative analysis. Addict Behav 2023;141:107650.
Canzona MR, Murphy K, Victorson D, Harry O, Clayman ML, McLean TW, et al. Fertility Preservation Decisional Turning Points for Adolescents and Young Adults With Cancer: Exploring Alignment and Divergence by Race and Ethnicity. JCO Oncol Pract 2023;19:509-15.
Palakshappa D, Denizard-Thompson N, Puccinelli-Ortega N, Brooks A, Damman A, Miller DP, Jr. The experiences of community organizations partnering with a medical school to improve students' understanding of the social determinants of health: A qualitative study. Med Teach 2022;44:1260-7.
Nightingale CL, Canzona MR, Danhauer SC, Reeve BB, Howard DS, Tucker-Seeley RD, et al. Financial burden for caregivers of adolescents and young adults with cancer. Psychooncology 2022;31:1354-64.
Hall DL, Levine BJ, Jeter E, Chandler A, Tooze JA, Duffecy J, et al. A spotlight on avoidance coping to manage fear of recurrence among breast cancer survivors in an eHealth intervention. J Behav Med 2022;45:771-81.
Danhauer SC, Canzona M, Tucker-Seeley RD, Reeve BB, Nightingale CL, Howard DS, et al. Stakeholder-informed conceptual framework for financial burden among adolescents and young adults with cancer. Psychooncology 2022;31:597-605.
Andrews C, Childers TC, Wiseman KD, Lawhon V, Ingram S, Smith ML, et al. Facilitators and barriers to reducing chemotherapy for early-stage breast cancer: a qualitative analysis of interviews with patients and patient advocates. BMC Cancer 2022;22:141.
Diaz-Garelli F, Strowd R, Ahmed T, Lycan TW, Jr., Daley S, Wells BJ, et al. What Oncologists Want: Identifying Challenges and Preferences on Diagnosis Data Entry to Reduce EHR-Induced Burden and Improve Clinical Data Quality. JCO Clin Cancer Inform 2021;5:527-40.
Wagner LI, Duffecy J, Begale M, Victorson D, Golden SL, Smith ML, et al. Development and refinement of FoRtitude: An eHealth intervention to reduce fear of recurrence among breast cancer survivors. Psychooncology 2020;29:227-31.

Services Provided

Initial consultations are provided at no cost to the investigator. All other services are provided for a fee. Submit a Q-PROSR Service Request Form to initiate an estimate. For grant proposals, please reach out at least three weeks prior to submission. For funded projects, please reach out at least two months before any requested work begins.

Qualitative Research Services

Consultation on grant proposals.
Consultation on interview guide and focus group guide development.
Data collection (interviews, focus group moderation, usability testing, cognitive interviews).
Data analysis (thematic analysis, content analysis, framework analysis, grounded theory, report writing).
Manuscript and grant writing support.
Training and mentoring on qualitative research methods.

Patient-Reported Outcomes (PRO) Measurement Services

Consultation on grant proposals.
Methodological support in the design of patient-reported outcomes measurement.

Services are available for Atrium Health teammates across all locations, including AHWFBCCC (Charlotte campus and Winston-Salem campus).

Citation Resources

Cite the P30 CCSG

The authors wish to acknowledge the support of the Atrium Health Wake Forest Baptist Comprehensive Cancer Center Qualitative and Patient-Reported Outcomes Shared Resource, supported by the National Cancer Institute’s Cancer Center Support Grant award number P30CA012197. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.

NIHMS Guidelines for Authors

Authors should also make sure that all publications are processed by the National Institutes of Health Manuscript Submission (NIHMS) to obtain a PubMed Central reference number (PMCID), per NIH guidelines.

External Funding Application “Facility” Description